…. But I am positive enough to believe it’s a chance.
I’m struggling with the doom & gloom of the Internet. I suppose everyone is doing what I am – having there very own honest say, I just didn’t expect it to be so negative and hard to read about. I feel I don’t belong in this ‘group’ I don’t feel ill, i don’t have all these awful hardship others have. That’s not me, I have got MS and am going through DMT. I’m in no way in denial about that, just maybe a bit lost as to where I fit in.
Im a very positive person the moment and in quite a good place, I know many things may change but I will deal with that as, and when it happens. I can’t bring myself to sit and think about the ‘what if’s’ it’s such a waste of time and quite a boring subject to me. If I stop and do that I may miss out on the other important things going on in life!
I’m struggling to find a place to be content, somewhere I can have a balance. I don’t want to keep talking to people around me about this as they don’t understand, and i find it hard work explaing everything all the time. The ‘support’ places and stuff I’ve found are not for me right now. I feel I don’t fit in as I’m not part of that clique either.
Maybe I am in denial, maybe it will take things to get worse before I realise this is serious, but for now my life hasn’t changed since last week and quite frankly I have too much other stuff to do.
I have 2 kids birthdays to organise, my baby boy is 1 this week and my daughter is coming up 5, so naturally she wants a disco like all her friends have! With a frozen cake and a princess! Then there is back to school stuff to do, my big girl is starting reception in September and I need to settle my lil boy into his nursery place before I go back to work from maternity leave in a few weeks time.
After I have sorted all that out I want to do something special for our wedding anniversary (about as special as you can get with 2 kids under 5!) It’s our second anniversary and to be honest the 1st was a disaster, I had just had my little boy and he was in special care after he was born. We hadn’t long had him home and my husband had went back to work, so no 1st anniversary for us or birthday party for my daughter last year This year I want both to be special, but just like always life is crazy busy and costs a fortune. I have nothing to whine about and no time to do it if I wanted to. My family keeps me busy for now and I’m lucky to have that.
I’m also glad for the treatment, it sounds positive and hopefully can keep me fit and mobile for as long as possible. I’m not stupid tho, I know you can’t cure MS but why is it so strange to be grateful for the chance that DMT can give you? After all shouldn’t you always take a chance if you get one? And if it doesn’t help then I tried and ill try something else. I have options, which is more than some people have.