Me and my husband have been attending a ‘living with MS’ educational session organised by my MS nurse. It’s spread over 3 weeks and we have done 2 classes so far. It’s interesting to know the science behind MS and it has helped us understand a little more about what happens to your body and how to explain MS to others.
It was described as your immune system attacking your nerve coatings in your central nervous system, which is probably the easiest way I’ve found to explain MS to people yet. It was also interesting to see the map of the world with where most cases of MS are, I had no idea Scotland had the most cases of it. Living in the North East of England we are pretty close to them.
What I’d have loved to learn more about was the nutritional side of things, especially vitamins and good foods. It was a shame that this part was skipped over a bit as the person who was coming to speak to us couldn’t make it. I find the Internet full of wacky ideas for MS ‘diets’ which are all looking awful to be honest, I’d have liked to explored this side a bit further.
Next week is our last session and it’s a question answer one with a visit from one of the MS charities who is bringing some information for us to look at. I was expecting something a bit better from this but I suppose it’s better than nothing.
I’m still finding myself overwhelmed and although knowledge is power and I understand some aspects of MS a bit more, i’m still struggling to find a place where I fit in or any information that is relevant for me. Maybe it’s just one of those things that takes time to click into place? maybe I’m looking for something to explain everything to me, and maybe that’s what everyone else with MS is doing too.
Still a bit lost but plodding on as normal – waiting for something to click into place.