Spoke to soon :(

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I’m tired and want t sleep but It seems both kids are coming down with something 😦

I picked my daughter up from school today and she seemed to have a sore throat and a cough. Not too bad, unpleasant, but everyone gets something. However I want to go to bed now and not only can I hear her coughing,  but littlist boy is coughing so badly he can’t sleep!

Im currently sat in my bed with little man now trying to get him back to sleep. It seems to be quite a ticklish cough as it just won’t stop and a soon as he does he is waking himself up, he is clearly exhausted too just like me!

I have a feeling it’s going to be a long night, and to top it all off I have work tomorrow too – MUST GET SLEEP!

Coffee & Cake

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My cousin hosted a coffee morning for Macmillan yesterday. I decided to make rocky road bites with all the birthday chocolate we had accumulated last week from my daughters birthday, they were delicious and no good for my diet at all! The cakes people bought & made were lovely, and it was really nice to see the effort people put in for this charity.

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My cousin has cancer and has dedicated so much of his time and energy to supporting so many charities
He is doing things from this to running the GNR, sky dives, zip wire challenges and so much more, he is quite an inspiration and never complains

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Lots of family amd friends came too and it was lovely to have a catch up and to see how everyone is doing. A really nice morning and hopefully lots of funds raised for a great cause.

Proud to support Macmillan.

MS & being a Mam of 2

The most exhausting thing I deal with on a daily basis is without a doubt dressing and changing my one year old.

He is at that age where they fight you every step of the way, he will scream, kick, roll over, pull his clothes and nappy off and generally do everything is his power to escape from you. This usually results in some pretty interesting ways to get dressed, and no amount of toys or objects will keep him still now for a nappy change so the best plan I’ve found is to always just dive in and hope for the best, and keep telling yourself he will grow out of it.

All kids do this, my daughter who is nearly 5 went through this, I remember the desperate battle to change her clothes, fasten her coat and put her shoes on. It was a struggle back then but im finding it especially hard with my hand and arm as it is.

Things I struggle with now is my right arm and hand. My fingers don’t function and I have no grip, my wrist hurts and has no strength and my shoulder constantly aches. I find buttons and poppers difficult when the kids are still, having to hold a screaming, kicking child takes twice as long and causes a lot of pain in my arm.

My little boy has only just gone 1, I know this goes on of a while and is then replaced by other things:

● Going rigid when you try to strap them in the pushchair or car seat. 

● Flying legs when you try to put them in a highchair or shopping trolly.

● Going limp or lying on the floor refusing to move so you have to carry them. 

● Running away/having a tantrum so you have to carry them away.

● Being too tired to walk so needing to be carried.

All these things i’m sure I will find difficult when I come to do them second time round. There is 4 years between my daughter and son, and things just don’t work like they used to. Fastening my daughters buttons on her school cardigan, putting plaits in her hair and getting a zip fastened are really hard tasks now and it’s really frustrating. This is before you even count sleepless night and early rises.

I’m hoping they look after me when they are older after all this!

Let’s look after me

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I went for a run last night, it’s been about a month since ive been so really sore today 😩. I didn’t realise how much I missed it, I think I need to make sure I have time to go at least once a week, especially while the weather is still fine. It’s great for clearing your head and getting out of the house.

I first started running last year. It was something I always wanted to do but never thought I could do it, I barely walk places, always take the car and have no fitness ability at all.. Me and my friend just run up and down the coast beside our house, which is 5k and a beautiful route. With having 2 kids under 5 I don’t get a lot of time to myself, so I usually get the kids in bed and head out at about 8 pm. In the summer this is amazing, and the views and coast line are gorgeous,  in the winter it’s bitter cold and is so pitch black it looks like a horror movie  😱

I started originally because I wanted my body back after having my son, we had decided no more kids, I wanted to feel fit and healthy and run around with my kids.  I had joined slimming world about a month before and was loosing weight but wanted to exercise too. I also wanted something for me, some time to focus on myself and to get out for a bit.

After we had been running for a while we decided to aim for something, so we entered a 10k race. We completed this in July of this year raising £285 for Macmillan in the process. It was an amazing day and I totally got the bug, I love the freedom of running and the atmosphere of a race. I wanted to do more, our aim is to enter the GNR next year and complete some more 10k races alongside our training.

All this was before my diagnosis,  this was me 2 stone lighter and the fittest I’d been in years. So why in the last month have I been totally off track?

My MS hasn’t changed me as a person, it has given me more to think about tho. I want to be as fit and healthy as I can be for as long as possible.  I want to run for as long as I can, I want to take care of my body so I’m as strong and in the best shape I can be. But most of all i just want to be the me I was before.

This isn’t really about my MS I suppose,  it’s just my life and what I want to do and MS won’t get in the way of that if I don’t let it.

When MS was very first mentioned by the Dr I thought there was no way it could be, I knew very little about it but thought of people tired and with mobility issues and that was not me. I remember telling my running partner and saying “it can’t be, people with MS don’t run!” Well I do and I will carry on as long as possible. 

Look out for more medals 👟🏃

No use crying over spilt milk

Today didn’t got off to the best start, while making a bottle for my little boy at breakfast time I managed to drop it all over me,  the baby and floor! Very clever. After a full outfit change for us both and a clean floor (with full screaming baby now as he wanted his milk 5 minutes beforehand) I then pick up the bottle with the remaining milk in and proceed to drop it on the work bench! Honest I couldn’t make this stuff up! Stupid hand.

Thankfully that was the worst part of my day. I had loads of energy this morning and after his bottle a very content baby, so I decided to tackle the bedroom. I had a charity bag filled in no time and some of the baby stuff put aside to sell. We are hoping to sell and move house next year so I’m trying to clear out as much as i can, this is hard to do with 2 kids in the house who want to ‘help’ you. I’d even also managed to tidy up some boxes and strip the bed while i was in there. I was on a roll! as it was going great, I tidied the kitchen and living room, put the ironing away and hung the washing up! By lunchtime the house was looking very neat indeed.

My 4 yr old then returned from a sleepover at my mam’s house, team her and my little boy together and the house was trashed again!

It was cleaner than it was tho which is the main thing, and i have another bag to go to the charity shop. I will clear this house 1 bag at a time!

Tonight i am wiped, I think shower and early night is on the cards.

Laughter is the best medicine 💗

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When you have a small moment that has a huge impact, and suddenly your pulled back into the right way of thinking.

Last night me and my husband were discussing my MS and how things may change for us. I was dwelling on small trivial things that I shouldn’t . The sudden realisation that this is permanent and i’m going to have this forever had suddenly sunk in. I had really hoped I would take it better.

It had somehow turned into a serious and quite negative conversation which helps no one, I found myself fixating on stupid things and could tell if this went on my head would start spinning. I’m usually not like this and hate the whole feel of talking like this. Maybe it’s because I hadn’t seen him all day and have to talk at 100 miles an hour about every random thought I’ve had! Something I know that drives him mad haha.

My lovely, amazing husband then manages to have me in hysterics, literally crying with laughter. Love how someone knows exactly what you need at just the right time. This is how I know we will be fine, no matter what comes at us or how bad it may be.